Modeling 4 Muscles

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It is crucial that everyone in every community in this nation be aware of muscle disease and how it so gravely affects an individual’s quality of life. We must use this knowledge and band together to promote a sound and viable avenue to raise funds for scientific research. There are so many different types of muscle disease, they are too numerous to name. Muscular Dystrophy for example, is an inherited muscle disease and although few types affect females, MD alone affects five to six hundred male newborns each year in this country. I can only imagine the emotions that these children and their families must go through, not to mention the great limitations on their quality of life. I had a first hand experience with this when my grandmother was diagnosed with Amyotropic Lateral Sclerosis (ALS). ALS is better known as Lou Gehrig’s disease, named after the famous baseball player who also suffered from the disease. However, unlike MD, which is hereditary, ALS is not selective at all and 90-95% of those who acquire this disease are sporadic cases. This means regardless of race, gender and age this disease can strike anyone at anytime for reasons that are completely unknown to the medical profession.

How would you feel if you could no longer raise your arm to scratch your nose, or no longer wipe a tear from your child’s eye? This particular neuromuscular disease is fatal and affects every voluntary muscle in your body. Sadly, so little is known about this disease that by the time a patient is diagnosed, a staggering 80% will lose their life within two to five years. There is no treatment available for those who suffer from ALS, the one and only medication available helps to slow the progression of the disease in a small number of patients. The medication is costly and the equipment needed by these patients is even more expensive.

I have founded an organization that I have named Modeling for Muscles (m4m). I feel being named Lights of the Delta Outstanding teen will help me as I reach out in communities to promote this organization and secure sponsors for the fashion show events. My plan will allow me to visit schools and share with young people the importance of scientific research while encouraging them to step out of their comfort zone and join me in the fight against muscle disease. I plan to organize m4m in such a way that will bring families together. I truly believe that if our children get involved then our families will follow. The young people of this nation are the key to our future success and they need someone who is informative, dedicated and of good moral character to encourage them in a positive direction. I believe the Lights of the Delta Pageant will open the window of opportunity and allow me to share these qualities with our youth, while striving together to make an impact of such greatness that people of this country young and old become just as aware of this issue as they may be with other illnesses such as cancer.

My dedication to this organization has already allowed me to accomplish so much. The logo is a Purple Heart to honor bravery, similar to the military Purple Heart, which honors outstanding bravery in battle. A hummingbird sits stationary above the Purple Heart with its beak pointed at the center. This was chosen because of my grandmother’s love for hummingbirds and the symbolic meaning of strength and energy they have. All monies raised from the fashion show event spectator fees, as well as merchandise sales will go to the Muscular Dystrophy Association in Little Rock, Arkansas.

I believe in this plan and everything it stands for. Those who suffer from muscle disease and the families who care for them deserve this organization to honor all those who are suffering and whom have lost their dignity and ultimately their life to this disease. The most sacred thing we have as human beings in this life, before we pass on to our final resting place is our dignity. I invite everyone to stand together with great compassion and join the fight to conquer this disease. We all will face death someday, but let us face it with our dignity.
Haley Brooke Green
08/18/09